It’s been an embarrassingly long time since I made a YouTube video for you all (you’ll find out why in the video!), but I felt compared to talk about our relations with family and friends when we’re ill this week. Coping with family and friends during Chronic Fatigue Syndrome is a subject very close to my heart, so I’d love to share some advice with you.
As many of you know it really hurts when those close to us say things like these or they begin to fall away. We feel totally powerless and frustrated. Don’t they know what it’s like for us? Why are they doing this to us? We want to tell them how we’re really feeling, but if you’re anything like me, you wonder what the point is- they’ll never understand, so why bother? Sometimes, it’s a lot safer and less tiring to stay in our little caves and wait until it all blows over.
In this 11 minute video, I talk about:
- why it’s so difficult for our loved ones to understand CFS
- what to do if people don’t believe you
- how our perspective changes during CFS
- why trying to stay connected to people is important, even if you’re angry and don’t want to
Click here if you’d like to join the online hangout I mention in the video.
I really hope these tips help my darling. I know how isolated and lonely you feel- sending you so much love.
Love, Katie xxx
(Apologies for the terrible lighting in this video, by the way. I was going to stop recording and start again, but was on a bit of a roll!)