When I was very ill and sleeping for 22 hours a day, there was absolutely no way in the world that I could have even lifted a book, let alone read one. Even when my health improved, I would manage about 3 minutes of reading with a book propped up in front me before giving in and just lying in bed exhausted (I’d been reading the same line for the last 2 minutes of those 3 anyway!) I am an unashamed bookworm and always have been from an early age, so not being able to read was absolutely heartbreaking for me. I’m pretty sure that if you’d put a toddler’s bath-time book in front of me, I would’ve struggled to get through it all.
So, when I was recovering and getting to the stage where I wanted to read more, I jumped on board and went for it. The vast majority of all the resources I looked at came from the internet. The internet is pretty flippin’ amazing- let’s be honest (you wouldn’t be reading this now for a start if it weren’t!) It’s easy, it’s fast and you can usually get exactly what you’re looking for with a quick Google and a crossing of fingers.
I had to get to the bottom of this CFS thing- there had to be something out there, someone who had all the answers or the one quick trick that worked for them. I searched and searched and searched…and became more upset, confused and fearful than ever before. The constant tales of hopelessness and articles about what doctors may or may not to be close to uncovering was just too much for me while I was recovering. When I was feeling hopeless, all of these articles reflected back to me exactly what I was thinking, which was that I was never in a million years going to get out of this thing. If leading scientists and researchers didn’t get it, then what hope did I have?…cue feeling lost, listless and incredibly anxious. So, I decided I had to stop reading CFS medical articles and focus on more uplifting things instead, things that gave me hope and told me that there was a way out.
How CFS Medical Articles Can Help You
As you know, I’m not here to bash the medical profession and tell you how terrible they are- we are incredibly lucky to have a healthcare system at all, one which is hygienic, forward-moving and proactive. They’ve helped myself and my family a lot during the years and I’m incredibly grateful to them.
Looking at Medical Articles might help you to:
- know that this illness is a big mystery to everyone, so you’re not alone
- know that scientists and doctors are looking into the causes and treatment of the illness (Woohoo! Light at the end of the tunnel!)
- connect with others who are looking for the same answers as you
- get specific advice on any medications you’re taking
- understand what the medications you are prescribed do, why they’ve been prescribed and the effects they might have on your body
So, all in all, not bad, ey?! These articles are especially useful for side-effects and might draw your attention to symptoms you’re experiencing that you can go back to you doctor with next time. These articles broaden your horizons and make you see things in a different way.
How Medical Articles Might Hinder You
If you’re finding that you’re feeling down and deflated after reading medical journals and articles, here are a few things to consider.
Stopping looking at medical-based things (even for a short time) might help you to:
- be ok with not understanding or getting your head around 27- syllable latin words that only a few people comprehend(!)
- understand the illness for yourself and what is means to you, instead of someone else’s interpretation of it
- get out of your head and stop thinking about how rubbish things are for a little bit
- give yourself a much-needed break
- focus on the positive and not the negative
- give yourself permission and time to focus on fun things in life instead of constantly drawing yourself back to you illness (yes, you are allowed to do that- grab that box-set!)
- stay away from the feeling of hopelessness some of these articles can bring, so you can use your energy to focus on recovery rather than negativity
Don’t get me wrong, there are some amazing CFS/Fibromyalgia websites out there who are doing amazing work and I’m grateful to them for raising awareness and campaigning for more funding and research into the illness- it’s exactly what we need at a time when the needs of M.E/CFS and Fibromyalgia patients are often over-looked. But if you’ve been feeling negative and hopeless after reading this article, take a break from them for a while (this goes for my website too by the way- if it’s making you feel uncomfortable, log off for a while!)
Choose what you read carefully, as thoughts and words can quickly become feelings, and the less we step on the emotional roller-coaster sometimes, the better!
Over to you my lovelies- do you read medical websites? Which ones help you the most? Have you been temped to have a break from them?
Love and learning,